Resources/Sample Letters

Resources

Click on the links

Sample Letters

1. How to prepare for the School Meeting (ie. IHP, IEP, 504 Plan)

2. From Allergist for a monitor at School & on Bus

3. To Food Services

4. From your child's Athletic Instructor

5. From Teacher to the Classroom Parents

6. From School Nurse to the Classroom Parents

7. HIPAA law Permission to inform school of your child's allergies

8. PAK's Food Allergy Program Letter

9. Letter to the TSA (Transportation Security Administration)

10.Option 1 Birthday Celebrations in the Classroom

11. Option 2 Birthday Parties without food

12. From Allergist for Tree Nuts & Peanut Allergy

13. Allergist letter and 504 Plan

14. Letter of Request for a 504 Plan meeting

15. Download PAK's Home Care Food Allergy Handbook

16. Babysitter Consent form - redcross.org

17. NEW From Teacher to Classroom Parents - MILK ALLERGY

Education (note: click on Bulletins to learn more about 504 Plans)

1. 2008 New York State Anaphylaxis Guidelines: "Caring for Students with Life-Threatening Allergies"

2. Office of Civil Rights

3. Education and Advocacy Solutions, LLC Section 504 and 504 Plan Outline

4. NYS Allergy & Anaphylaxis Management Act of 2007

5. ADA Settlement Agreement

6. USDA Accommodating Children with Food and Nutrition Service Special Dietary Needs in the School Nutrition Program

7. NEW Foods of Minimal Nutritional Value and Competitive Foods

8. NEW NYSED.gov

9. NEW USDA National School Lunch Program

10. NEW USDA National School Lunch & Breakfast Program: Foods of Minimal Nutritional Value

What is a 504 Plan?

* Section 504 is a civil rights law that prohibits discrimination on the basis of a disability in education and ensures a safe and appropriate public education. If schools do not comply, call 1-800-368-1019 or email ocrmail@hhs.gov or visit www.hhs.gov/ocr to file a complaint online. To learn more visit www.504idea.org

* Source: Food Allergies for Dummies by Robert Wood, MD.

Epinephrine in NY Schools

1. Click on Use of Epinephrine Auto-Injector Devices in the School Setting to read the 2002 directive from NYS State Dept. of Education.

2. Click on The latest regulations related to epinephrine in NY city public schools.

3. NYSSHSC, a state-funded organization, created a document called "Food Allergy Module".

4. NYS Bill to Self Carry

5. New York State Nursing Guidelines

Action Plan for Anaphylaxis

Create one for your child with their picture. Click on: www.allergy.org.au or www.foodallergy.org

Food Allergy Support Organizations

1. Food Allergy Research & Education (FARE) works to build public awareness of food allergy through the media and through education, advocacy, and research efforts.To learn how to report an allergic reaction, call FARE at 1-800-929-4040. Sign up for the Special Allergy Alert Notices. FAAN also offers "Be a Pal" Program. How to read a Label. Also visit www.fankids.org, www.fanteen.org and FAAN's College Network.

2. Kids with Food Allergies (KFA) - Education, peer support, food & cooking assistance, outreach programs, and twice monthly e- newsletter.

3. safe4kids - brought to you by Anaphylaxis Canada. This site is all about kids like you! We have lots of games and activities for you to enjoy. Check out the School and camp lesson plans and activities.

Food Allergy Research

Visit Mount Sinai (NY) at these two websites: www.clinicaltrials.gov and www.cofargroup.org

Asthma Resources

1. Asthma & Allergy Foundation of America

2. The American Academy of Allergy, Asthma and Immunology 1-800-822-2762 Physician Referral Line

3. The American College of Allergy, Asthma and Immunology 1-800-842-7777

4. Allergy and Asthma Network–Mothers of Asthmatics, Inc.

5. Associated Allergists & Asthma Specialists, Ltd.

Eczema Resources

National Eczema Association

Medical Supplies and more

1. Medical Bracelets - It is very important that your child wears a medical bracelet (especially if your child is in daycare/school)

Visit medicalert.org, americanmedical-id.com, Allerbling.com, LaurensHope.com, mediband.com, petitebaublesboutique.com, allermates.com and Fiddledee IDs.

2. Go to allergykids.com to see Robin O'Brien's story on CNN, and shop for products that will help keep your child safe in school. Special offer to PAK members only - 10% off. Code: PAK. Our mission is to educate mothers about the risks that chemicals in foods present to our children.

3. Allergicchild.com, by Nicole Smith, has books & classroom posters available for the food allergic child.

4. Epipen for Anaphylaxis

5. Twinject for Anaphylaxis

6. FoodAllergyTalk.com

7. Medical Bags - Omaxcare.com, Allergy Haven, TAKE IN CASE™, Allergypack.com, Allergy Kidz ware, www.etsy.com, www.allergyapparel.com

8. Foods Matter - the web's fastest growing allergy/intolerance information site based in London.

9. Patient AirLift Services - is a non-profit that arranges free air transportation based on individual requiring critical life-saving medical care 1-888-818-1231 or 516-640-1390.

10. Plane Sheets

Clothing

1. Check my Tag™ makes allergy awareness clothing especially for young children at risk.

2. www.allergyapparel.com a company that offers unique, hip, and fun designs for your kiddo that has an allergy.

3. www.mallergies.com an interactive site focusing on the latest trends on food allergies.

4. www.alertclothingcompany.com Colorful, cheerful graphics and the message of food allergies included on each shirt.

Recipes

1. PAK's Cookbook

2. www.foodyoucaneat.com

3. www.ming.com Chef Ming Tsai has recipes free of the top 8 allergens

4. www.allergyfreemom.com

5. www.allergyeats.com your online guide to allergy friendly restaurants

6. www.lonelyplate.org a food allergy guide to safe dining, airlines, hotels, kid-friendly venues

Peanut Allergies

www.peanutallergy.com

www.peanutfreesweettooth.com

Health & Environmental Category

1. U.S. Food & Drug Administration food recalls & safety alerts

To report mislabelling of an allergen ingredient, please call the NY FDA office at #718- 662-5588.

For allergic reactions to poultry or meat, call the National US FDA Hotline at 1-800-535-4555 and ask for Mary Belle.

2. www.checnet.org 3. www.pollen.com

4. www.checli.homestead.com

5. www.nasn.org

6. www.nysasn.org

7. www.schoolhealthservices.org

8. www.cdc.gov

9. www.nysed.gov

10 www.health.state.ny.us/

Top Docs in Long Island, NY (Source: 6/3/08 LI Newsday)

Allergy & Immunology

Dr. Vincent Bonagura, Great Neck 516-622-5070

Dr. Sharon Markovics, Manhasset 516-365-6077

Dr. Daniel Mayer, Smithtown 631-366-5252

Dr. Michael Richheimer, Bay Shore 631-665-6363

Dr. Marc Sicklick, Cedarhurst 516-569-5550

Long Island Allergy & Asthma Society is a local organization of allergists and other medical doctors with practices on Long Island, New York. Click here to find an allergist on Long Island

**This listing does not imply any endorsement by or affiliation with PAK.

Disclaimer:

PAK is not a professional or medical organization. It is a group of parents sharing information and supporting each other. The discussions, meeting minutes, handouts, guest speakers, agendas, and other products of our support group do not constitute medical/legal advice and should not be relied upon as such. Always discuss individual health questions and medical issues with a qualified personal physician.

Dr. Wood's Articles

1.504 Plan for Food Allergies

2. Why are food allergies on the rise?

3. Probiotics in the Treatment of Food Allergies

Credit: Dr. Robert A. Wood is Professor of Pediatrics and International Health and Chief of Pediatric Allergy and Immunology at the Johns Hopkins University School of Medicine in Baltimore, Maryland and author of the recently published Food Allergies For Dummies (John Wiley & Sons).

Visit Dr. Wood's Food Allergy Website at www.DrRobertWood.com.

Does your child have severe food allergies?

You've come to the

right place.

How to Care and Storage your EpiPen/Twinject:

1. In a dark place at room temperature (59-86F)

2. Do not refrigerate

3. Do not expose to extreme cold or heat

4. Examine contents in clear window periodically

(*source: FAAN)

Protect Allergic Kids (PAK)

P.O. Box 227